I can at least open my mouth and ask for help. Max cannot. Lots of kids just like him have limited means of communicating a specific need and rely on their families and professional teams to interperet their signs and signals. It pays to be a good observer and watch for patterns and small gestures, tiny movements that might seem like nothing but really mean, "I'm starving, feed me now!" or my favorite, "I'm going to throw-up." Support can and does mean a myriad of things to both a special needs child and to that child's family. Maxwell is well supported on a number of levels. Is it possible to be over-supported? Well, in Max's case probably not because we have so many challenging facets of Maxwell's life to focus our energy. However, very often we use a trial and error process to determine exactly what he needs. This can lead to interesting results and even more interesting, not to mention expensive, collection of stuff. Right now, Max's cerebral palsy is getting a lot of attention from all of us and the 'support' is getting laid on thick!
|Max's new support accessories...|
I am amazed at the high level of tolerance that Maxwell has for his new accessories, some of which he has to wear at night! He has quite a collection and needs to wear most of it together...kind of like his little sister, Flora Bay's dress-up policy....wear everything in the drawer...at the same time. Being that this is Thanksgiving week, now would be a very good time to say Thank You to all the amazing people in our life at the center of the stage and in the wings...a supporting cast is what makes the star shine...and Max continues to do so thanks to you. We are grateful always but especially so this week. Happy Thanksgiving!
|Max getting used to his new hip-brace.|